Skip to main contentEnter
Purposeful journalism for people who care about our town
Ipswich.co.uk logoSupport our journalism
News

"She's an absolute trooper": Ten-year-old Charlotte's story captures hearts, and a national award nomination

A remarkable ten-year-old girl who refuses to let a rare muscle condition define her has become the star of an award-nominated film. 'Charlotte's Story', captured by local filmmaker Kevin Burch, showcases the vital work of East Anglia's Children's Hospices.

The big picture: Charlotte's journey from spending her first four months in hospital to becoming a fun-loving, confident child shows the transformative impact of EACH's Treehouse hospice in Ipswich.

Why it matters: The Charity Film Awards (CFAs) are the world's largest cause-based film campaign, with over 2.7 million viewers expected to tune in to the 2024 virtual event. Winning would shine a national spotlight on the charity's vital work.

Behind the story: Charlotte lives with Nemaline Myopathy, a rare genetic disorder causing muscle weakness throughout her body. Despite facing continuous health challenges, particularly during winter, she maintains a remarkably positive outlook.

"She's so resilient, pragmatic and robust," says her mum Nova. "She continues to defy the odds but is an absolute trooper and fights with all her might."

Charlotte's story

Life at the Treehouse: Charlotte particularly enjoys:

  • Music therapy, especially playing the keyboard

  • Baking cookies for carers and nurses

  • Arts and crafts

  • Playing board games

  • Using the hospice garden swing

"The staff are really nice and I enjoy chatting to them," Charlotte says. "My favourite thing is music therapy...it makes me happy."

What they're saying: The man behind the camera, Kevin Burch, said: “I’m delighted that the film has been put forward because it helps highlight the incredible things which happen at EACH and the immense skill and dedication of their team.

“Charlotte and Jenny, the nurse, were so natural and relaxed that it made my job of filming them so easy. It’s a privilege that I get to do what I do behind the camera."

The bottom line: Charlotte's story represents thousands of children and families supported by EACH across East Anglia. You can help recognise Charlotte's story and EACH's vital work by voting for the film at https://smileycharityfilmawards.com/films/charlottes-story.

Our content is free to read thanks to the generous support of Happiness Club

Samantha Brook

Happiness Club

Based in Ipswich, Happiness Club is on a mission to help residents and businesses cultivate lasting happiness and wellbeing.
News

SEN Santa sessions at Buttermarket this weekend

Santa will turn down the music and limit numbers at the Buttermarket Shopping Centre this weekend after parents asked for calmer festive events for children with special educational needs (SEN).
by
Continue reading →
News

Suffolk researchers test whether singing can treat Parkinson's 'poker face'

Researchers in Suffolk are launching what they believe is the first UK study testing whether musical-theatre-style singing can rehabilitate facial expression in Parkinson's patients – addressing a symptom that affects around 9 in 10 people but has limited treatment options.
by
Continue reading →
News

Woman fighting for life after hit-and-run on Burrell Road

A woman is in a life-threatening condition in hospital after being hit by a car whose driver fled the scene on Burrell Road in Ipswich this morning, with a man in his 30s now arrested in connection with the incident.
by
Continue reading →

GBS , Kingsfleet and Ipswich School

GBS logo

GBS

This family-run construction company has delivered quality services across commercial building, fire protection, diamond drilling, health and safety, and asbestos removal for over 30 years.
The Kingsfleet team outside their offices in Claydon, near Ipswich

Spend your time and money as you wish

Award winning, independent financial planners helping the people of Suffolk reach their financial objectives.
News

Gym manager's childhood inspires hospital toy appeal

A Martlesham gym manager who spent much of her childhood in hospital has launched a toy appeal that has collected nearly 150 Christmas gifts for young patients at Ipswich Hospital.
by
Continue reading →

GBS , Kingsfleet and Ipswich School

GBS logo

GBS

This family-run construction company has delivered quality services across commercial building, fire protection, diamond drilling, health and safety, and asbestos removal for over 30 years.
The Kingsfleet team outside their offices in Claydon, near Ipswich

Spend your time and money as you wish

Award winning, independent financial planners helping the people of Suffolk reach their financial objectives.
News

Police appeal for witnesses after Pearl Road burglary

Detectives are investigating a burglary at a home on Pearl Road in Ipswich on Monday evening, where jewellery and bank cards were stolen and used fraudulently.
by
Continue reading →
Load more content
This article is free to read thanks to
Want our best content delivered to your inbox every Friday?

Have you subscribed to our free weekly newsletter?

If you haven’t, you really should. You’ll get our best content delivered to your inbox every Friday afternoon, just in time for the weekend. You can unsubscribe at any time, although 99.7% of people don’t.

  • Lee Walker
  • Joe Bailey of Brighten the Corners
  • Mark Hubert
6,630+ people are already loving it