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Almost 3,000 Suffolk women diagnosed with endometriosis amid long waiting times

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New figures reveal 2,875 women in Suffolk have been diagnosed with endometriosis over the past decade, but experts warn many more could be suffering in silence due to lengthy diagnosis delays.

Why it matters: Endometriosis affects one in 10 women of reproductive age, causing severe pain, extreme tiredness and potential infertility. However, many women wait years for a diagnosis and proper treatment.

The big picture: Office for National Statistics data shows:

  • 2,875 women in Suffolk (0.4% of total women in the county) received an endometriosis diagnosis between March 2011 and December 2021

  • This represents 845 diagnoses per 100,000 women in the county – below the East of England average of 989 diagnoses per 100,000 women

  • The average age for diagnosis is 35 years

A woman holding her stomach in pain
Endometriosis affects one in 10 women of reproductive age,Suriyawut SuriyaGetty Images

What they're saying: Emma Cox, chief executive of Endometriosis UK, welcomed expanding research into the condition but highlighted ongoing challenges.

"The relative lack of both data and research into endometriosis has historically made it easy to overlook or fail to grasp the seriousness of the disease," she said.

"Without strong evidence, decision-makers in healthcare and other sectors have either not recognised the scale of the issue, or not been able to argue for investments to support those with endometriosis."

Between the lines: The NHS estimates only 2% of women of reproductive age in England have been diagnosed with endometriosis. However, charities suggest the true figure is closer to 10%, indicating many Suffolk women may be living with undiagnosed endometriosis.

What's being done: An NHS England spokesperson said: "The NHS is committed to helping women affected by endometriosis and, while there have been some improvements, we know there is a lot more to do."

The NHS is:

  • Improving information about menstrual pain

  • Supporting local areas to develop Women's Health Hubs

  • Working to speed up diagnosis and treatment

Worth noting: Women in more deprived areas showed higher diagnosis rates than those in wealthier areas, which the ONS suggests may reflect private healthcare use in more affluent regions.

The bottom line: While thousands of Suffolk women have received an endometriosis diagnosis, experts believe many more are waiting for help. The NHS acknowledges more work is needed to improve diagnosis times and treatment access.

Sources

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500 mobile phones donated to support domestic abuse victims in East Anglia

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Virgin Media O2 Business has donated over 500 mobile phones to help survivors of domestic abuse and sexual assault across East Anglia, including Suffolk.

Why it matters: The donated devices will enable vulnerable people to contact support services, emergency services and family members when their own phones have been broken or confiscated by perpetrators.

The phones will be distributed to Leeway, Catch-22, and Mountain Healthcare support services across five counties – Bedfordshire, Cambridgeshire, Hertfordshire, Norfolk and Suffolk.

Some devices will come with free SIM cards and mobile data from the National Databank, which was founded by Virgin Media O2 and the digital inclusion charity Good Things Foundation. The National Databank is described as "like a food bank but for free data, texts and calls, helping to connect people in need."

Leeway

Leeway provides support to adults and young people looking to break free from domestic abuse in Suffolk and Norfolk.

The background: The donation comes as part of Virgin Media O2 Business's social value commitment through a recent police contract with 7F Commercial Services.

7F Commercial Services uses collaborative buying power for seven police forces in the eastern region, including Bedfordshire, Cambridgeshire, Hertfordshire, Norfolk, Suffolk, Essex, and Kent, to obtain better value for money from their contracts.

What they're saying: Suffolk's Police and Crime Commissioner, Tim Passmore, said: "Supporting victims is a key responsibility for me as Police and Crime Commissioner. We commission many services to support victims to help them cope with the immediate impact of crime, and, as far as possible, recover from the effects.

Tim Passmore, Police & Crime Commissioner for Suffolk
PCC

"I absolutely support this 'social benefits' approach. Funding is always tight and anything we can do to work with the commercial sector to access additional funding to support this work gets my full support.

"I know from speaking to victims just how devastating it is to be denied something as basic as the ability to talk to family and friends. I hope these phones provide a useful lifeline for victims of domestic abuse and sexual assault to feel more secure and less isolated."

Charlotte Hails, Head of Public Sector Vertical Strategy at Virgin Media O2 Business, said: "As a former senior police officer who specialised in Safeguarding and Public Protection, I know first-hand that mobile phones and connectivity are critical to ensuring victims and survivors are not isolated and can receive support.

"By partnering with local organisations in East Anglia, Virgin Media O2 Business is helping ensure victims and survivors receive the smartphones and data they need. This builds on our commitment to support police forces and communities across the UK to improve public safety and reduce crime."

The bottom line: The initiative aims to reduce isolation among victims of domestic abuse and sexual assault by providing them with secure means of communication through donated mobile devices.

Oliver Rouane-Williams speaking with an elderly couple in the town centre

We can't do this without you!

If you value strong, free, independent local media that fights tirelessly for our town, please consider contributing just £24 per year

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