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Almost 3,000 Suffolk women diagnosed with endometriosis amid long waiting times

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New figures reveal 2,875 women in Suffolk have been diagnosed with endometriosis over the past decade, but experts warn many more could be suffering in silence due to lengthy diagnosis delays.

Why it matters: Endometriosis affects one in 10 women of reproductive age, causing severe pain, extreme tiredness and potential infertility. However, many women wait years for a diagnosis and proper treatment.

The big picture: Office for National Statistics data shows:

  • 2,875 women in Suffolk (0.4% of total women in the county) received an endometriosis diagnosis between March 2011 and December 2021

  • This represents 845 diagnoses per 100,000 women in the county – below the East of England average of 989 diagnoses per 100,000 women

  • The average age for diagnosis is 35 years

A woman holding her stomach in pain
Endometriosis affects one in 10 women of reproductive age,Suriyawut SuriyaGetty Images

What they're saying: Emma Cox, chief executive of Endometriosis UK, welcomed expanding research into the condition but highlighted ongoing challenges.

"The relative lack of both data and research into endometriosis has historically made it easy to overlook or fail to grasp the seriousness of the disease," she said.

"Without strong evidence, decision-makers in healthcare and other sectors have either not recognised the scale of the issue, or not been able to argue for investments to support those with endometriosis."

Between the lines: The NHS estimates only 2% of women of reproductive age in England have been diagnosed with endometriosis. However, charities suggest the true figure is closer to 10%, indicating many Suffolk women may be living with undiagnosed endometriosis.

What's being done: An NHS England spokesperson said: "The NHS is committed to helping women affected by endometriosis and, while there have been some improvements, we know there is a lot more to do."

The NHS is:

  • Improving information about menstrual pain

  • Supporting local areas to develop Women's Health Hubs

  • Working to speed up diagnosis and treatment

Worth noting: Women in more deprived areas showed higher diagnosis rates than those in wealthier areas, which the ONS suggests may reflect private healthcare use in more affluent regions.

The bottom line: While thousands of Suffolk women have received an endometriosis diagnosis, experts believe many more are waiting for help. The NHS acknowledges more work is needed to improve diagnosis times and treatment access.

Sources

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Are organised crime fronts hiding in plain sight on Ipswich high streets?

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The National Crime Agency's crackdown on high street businesses suspected of links to organised crime has made headlines in Shrewsbury but remains conspicuously absent in Ipswich, despite remarkably similar retail patterns.

A pattern emerging elsewhere

While Ipswich residents have yet to witness raids on local businesses, a stark scene is unfolding elsewhere: officers forcing their way into brightly-coloured barber shops, vape stores, minimarts, candy stores and phone repair shops that have proliferated across town centres.

Last month, the National Crime Agency (NCA) coordinated 265 raids on such premises across England and Wales as part of Operation Machinize, targeting high street businesses suspected of being fronts for international crime gangs – but it remains unclear if Suffolk, or Ipswich, has been part of this operation.

Organised crime and the impact on Ipswich's high street
Oliver Rouane-WilliamsIpswich.co.uk

Shrewsbury and Ipswich: towns with similar profiles

In Shrewsbury, a market town not dissimilar to Ipswich, officers detained two Kurdish asylum seekers during raids on barber shops, seizing thousands of pounds in cash and illicit vapes. The intelligence suggested these establishments were linked to money laundering, illegal immigration and drug dealing.

The parallels between Shrewsbury and Ipswich are difficult to ignore. Both are historic county towns with traditional market squares, and a mix of independent and chain retailers. Both have experienced the same influx of barber shops, vape stores, minimarts, candy stores and phone repair shops on their high street.

Yet while Shrewsbury has seen decisive action, Ipswich residents have yet to witness any comparable enforcement activity. At least not visibly. And if it has, it has yet to make any difference.

The Ipswich landscape

According to commercial property analysts Green Street, the average number of barbers per person in England and Wales has doubled in the past decade.

Walk through Ipswich town centre and the changing retail landscape is evident – multiple barber shops, vape outlets, phone repair shops and sweet shops often within yards of each other, typically with very few visible customers.

It is important to note that we are not suggesting any specific businesses in Ipswich are engaged in illegal activity. The presence of these shops alone does not indicate wrongdoing, and many could be legitimate businesses.

But questions should be asked. And questions are being asked – repeatedly – by residents.

The scale of the problem

The National Crime Agency estimates that £12 billion in illicit cash is laundered in the UK annually, with lots of it flowing through criminal front organisations on high streets.

These businesses appeared to surge as shop vacancies grew following the pandemic, creating opportunities for criminal gangs to establish themselves in plain sight.

The suspicious signs are easy to spot: businesses claiming implausible income levels, unpaid utility bills despite supposed high turnover, and the sale of illicit products like illegal vapes and tobacco.

In Greater Manchester, linked mini-marts were found to be staffed by asylum seekers, some working illegally, with hidden compartments concealing contraband.

What Operation Machinize uncovered

During Operation Machinize, authorities discovered cannabis farms, seized Class A drugs, arrested 35 people and questioned 55 suspected illegal immigrants. Three potential victims of modern slavery were identified. Bank accounts worth over £1 million were frozen and £40,000 in cash seized.

Detective Inspector Daniel Fenn, who led raids in Shrewsbury as part of the operation, said: "Members of the public are angry. They can see these fronts are there. The criminals feel they are hidden here. They think they can come to sleepy areas and won't be found."

The same could easily be said of Ipswich.

The pattern of exploitation is particularly concerning – the NCA believes some shops are used as fronts for drug-trafficking, people-smuggling, modern slavery and child sexual exploitation. In 2023, it secured the conviction of one Iranian Kurdish barber shop owner who was using his London premises as a base for smuggling 10,000 people to the UK in small boats.

Impact on legitimate businesses

Legitimate barbers are calling for a registration scheme and stricter regulation. Gareth Penn, chief executive of the Hair and Barber Council, highlighted how illegal barbers have led to fungal infections from improperly cleaned equipment.

More importantly, though, is the damage being done to genuine businesses that cannot compete with those avoiding costs and taxes, and those that cannot find suitable high street premises.

The damage is significant and potentially long-lasting.

Will Ipswich be next?

For Ipswich, the question now is whether Operation Machinize will visibly extend to Suffolk – or indeed, whether it already has without public knowledge.

Unlike local police forces, the National Crime Agency is exempt from Freedom of Information requests, making it impossible for journalists or the public to determine how many Ipswich businesses, if any, have been investigated.

This distinction is important.

While local police forces handle everyday law enforcement, the NCA was specifically created to tackle serious and organised crime that extends across police force boundaries, international borders, or requires specialist capabilities.

Their involvement signals that these high street businesses are not merely local issues but part of sophisticated criminal networks operating nationally and internationally.

Security Minister Dan Jarvis has stated that "high street crime undermines our security, our borders, and the confidence of our communities", promising "decisive action" to bring those responsible to justice.

The road ahead

There are concerns about the effectiveness of current measures. Of the 265 raids conducted, only 10 shops have been shut down permanently. Many businesses raided were back operating within minutes of officers leaving.

The challenge for authorities extends beyond individual shops to dismantling the organised crime networks behind them – networks that may have been profiting in plain sight for years on our high streets. While local police forces can target individual businesses, only the NCA has the mandate and resources to tackle the international networks behind them.

For Ipswich residents concerned about these issues, the prospect of action against suspicious businesses cannot come soon enough. However, due to the secretive nature of NCA operations, we may never know the full extent of their activities in our town – only their results, if and when they choose to make them public.

Ed Sheeran surprised more than 200 Ipswich students with an impromptu performance at The Baths

Browse upcoming gigs

Check out upcoming BTC events across their three brilliant venues

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